Two (or more) steps forward

(Original appeared April 26, 2016)

Early reports are that Jacob’s kidney functions are back in line. Not only is his output still good, but his blood tests are confirming that some of the alarming numbers from last week aren’t so alarming anymore.
He is also having a PIC line inserted today. PIC is “peripherally inserted central catheter” and is a form of intravenous access that can be used for a prolonged period of time. This will go into his arm and replace the line that has been inserted into his umbilical cord for the last 17 days. The line will allow a more long term solution to giving him his meds. It is also another step toward allowing Deb to hold him, so we’re excited about that.
They have adjusted the settings on his ventilator to reduce the amount it helps him breath so that he doesn’t become too reliant upon the machine, and begins to learn to work for himself. So far, he’s been doing pretty well with it. The “weaning” process is so touchy though. One day he’s great, and the next he struggles. So they constantly monitor that for him.
Finally, I’ve been waiting to show you a photo of his eyes open. Big sis wanted to be the first to share the news with her buddies and teachers, and rightfully so. I have attached a picture taken just a few days ago soon after he opened his eyes for the first time. He can’t “see” anything just yet other than maybe detecting differences in light and darkness. But having his eyes open truly “humanizes” the experience for mom and dad even more. The tubes, wires, beeps, buzzes and patches all disappear when we see those wonderful eyes.
Today, our little guy is 17 days old. That’s 17 days more than we thought we might have with him when all of this began. And we’re so very thankful for each solitary minute of those 17 days.