Mama & Jacob

(Original appeared April 29, 2016)

What an image, eh?!
For me, this is what it’s all about. I loved this moment and will cherish it forever. And now for the latest.
Jacob’s brain ultrasound revealed that the blood clotting was slightly reduced but that the spinal fluid was building up. We will be scheduling an appointment soon to consult with a neurosurgeon to discuss the next steps.
For much of the morning (basically while he was on his tummy) his O2 levels were doing well. Since they rolled him back over he’s been struggling to maintain good levels. The nurse said it best: he’s tired.
He has stayed steady on weight and is currently at 1lb 8oz. His kidney output is still poor but we are hopeful that will get better soon.
They tried to insert his his PIC line today but couldn’t get it done. This was the second try. Hopefully the third try this weekend will be a charm. The timing is geting more crucial for that line as every day passes now simply because his umbilical line is on its last leg. And we thought reality TV had drama? =)
His lung xray looked better, sort of. The images go from good to bad to good again and so it’s tough to track progress. Sometimes when they look their worst is when his O2 levels do the best, and the opposite can be true too. Who knows.
What I do know is that we are doing much better today. The nursing staff has been A+. We are slowly coming to grips with what I keep calling our New Normal. It helps to know that so many of you have survived your own struggles, just like this, and we love you for that.
I had been posting about twice a day. But now that work has picked up a bit and we are settling back into a routine, I may back that down to once a day. I am glad our ‘audience’ of friends and loved ones are along for this ride, and I thought I’d give you the heads up =)